Supporting Wolf Hirschhorn Syndrome Families

Supporting Wolf Hirschhorn Syndrome Families

About HKLN

Mission Statement

Our mission is to give love, joy and money to kids and families with Wolf Hirschhorn Syndrome.

To support children and adults in Australia with Wolf Hirschhorn Syndrome and their families and carers.

To provide financial, emotional and educational assistance to these children and their families.

To foster awareness and advocacy for Wolf Hirschhorn Syndrome.



We value and  unconditionally respect the lives of individuals with Wolf Hirschhorn Syndrome.

We value the contribution, strength and perspective that individuals with WHS bring to their families and to society.

We value the assistance that can be provided by individuals, the community and the Government in sharing the care of people with WHS.



To enhance life experiences for children and adults with WHS and their families.

To establish a group of dedicated people who will provide leadership, enthusiasm innovative strategies to support individuals with WHS and their families.

To raise money that can be distributed to individuals with WHS and their families to assist with their care, equipment and other necessary resources.

To create a network for communication between families with WHS.



HKLN Team Members

Rosie Jones

Director / Chairman 


Rosie is the chairman of Help Kids Like Nick.

Rosie lives in the Northern NSW town of Brunswick Heads with her husband and children. She works as an artist and carer in addiction rehabilitation. Her background in the field of medicine working as a general medical practitioner in rural Australia gives a strong foundation for advocacy of those affected by disability.

Nick Blacket, the namesake of Help Kids Like Nick is the son of Rosie’s sister Alison Blacket.

Cameron Tilley

Director / Secretary


Cameron is our longest-serving Director, having being on the board since HKLN started in 2012.

He is a Director with Vincents Chartered Accountants specialising in advising small to medium business clients engaged in activities across a variety of industries including professional services, building and construction, manufacturing, agriculture, wholesale and retail trading, and service industries.

Nicki Marks



Nicki Marks is an agricultural economist and practical farmer who has worked across industry, government and academia.

She is married with three children and works in the Victorian Government. Nicki is also completing a Master’s in Education which she one day hopes to put to good use.

Nicki is currently managing the Victorian Food Innovation Network.

Bob Holland



Bob joined the HKLN board of directors in March 2018.

He has been involved  in the property and home building industry in a professional management capacity since 1980.

Prior to his retirement in 2017 Bob successfully managed the Queensland business for a major Australian home builder in Brisbane. This has given him a good understanding of the disciplines and skill sets that are needed to make a business successful in a competitive marketplace.

Jocelyn Manique

Grants Committee


Jocelyn got to know Heather (Nick’s Aunty) through the primary school their children attended.  A few years after the charity was established, she was delighted to be asked to form part of the Grants Committee at HKLN.

Jocelyn is a Chartered Accountant who has lived and worked in the UK, Switzerland, South Africa and Australia.  Now settled in Brisbane with her husband and two children, she enjoys putting her finance skills to good use both at work and community orientated charitable organisations. 


Christine Tod

Grants Committee


Christine Tod originally trained as a physiotherapist and the went on to complete an MBA.

She and her husband own Ethos Orthodontics which is a large Brisbane based specialist dental practice.

She has been and continues to be involved on the management committees of numerous community organisations.

Alison Blacket



Alison is one of the founders of HKLN. Alison performs the vital role of liaising with the Australian Wolf Hirschhorn community, disability advocacy, fundraising and general administration of HKLN.

Alison has been the primary carer for her son Nick for all of his 24 years. Mother to three sons, her previous work as a registered nurse serves her well.

Alison shares her time between living in Brisbane with Nick and time in St George where she and her husband David have Riversands Vineyard.

Heather Smith



Heather as operations manager performs the essential tasks which ensure the smooth running of HKLN. Her scope of work includes office administration, financial affairs, website development, fundraising and governance communications. Without her HKLN would not exist.

Heather and her husband Scott and four children live in Brisbane where they run a surveying company Exegen.

Heather is Nick Blacket’s aunty, sister to Alison Blacket and Rosie Jones.